Care for the Future, Use Cases for Informal Care (USECARE)
The aim of this study is to evaluate a self-management system (SENACA 2.0) with particular focus of joint application by Patient and Carer for stabilizing or improving behavioural or clinical risk factors (Patients) as well as improving Quality of Life (QoL) with both (Patients and Carers).
With increases in life expectancy, delayed onset of morbidity, and higher expectations for old age, interest in well-being in later life and how to achieve it has intensified. In this regards, Chronic or Non-Communicable Diseases (NCD) are the main factor for impairing Quality of life (QoL) of most individuals in their Course of Life and increasingly the main cost factor in public health. In addition, Morbidity Compression by Primary and Secondary Prevention by behaviour change (lifestyle) has- not least due to the advance of genetic assessment and therapy- become a viable strategy to challenge the burden of NCD and to increase the share of Quality-Adjusted Life Years (QALY).
Therefore, ICT- enabled Self-Management of Chronic Risks and (early diagnosed) Diseases is a promising way, but calls for Informal Care as an essential complementary part for improving therapy adherence and lifestyle behaviour change.
Within this context, USECARE project has the following objectives:
- to further develop the current prototype of a self-management system SENACA 0.2 (for SENior health ACAdemy) to enable carers for remote-controlling critical bio-markers of patients, therapy adherence (medication and lifestyle), aggregating information and social interaction,
- to field-test the prototype focusing on interaction between Carers and Elderly Patients, in a multi-centred observational study in different cultural settings,
- to deduct a sustainable meso- and macro-economic case as a basis of a sustainable Business Plan for SENACA.
The European Commission estimates a potential shortfall of around 1 million healthcare workers by 2020 rising up to 2 million if long term care and ancillary professions are taken into account. This means around 15% of total care will not be covered compared to 2010. In addition, new care patterns to cope with chronic conditions of older adults and the rise in new technologies will require new skills and competences. The USECARE project is set in a recognized framework of critical conditions and needs.
The study has been conducted in Switzerland, Norway and Israel recruiting 96 between patients (primary end-users) and respective proxy-patients or carers (secondary end-users). The plan of the study was that the participants would be trained in the online SENACA® health program before using the devices and programs during 100 days at home.
Partners having participated in this project are:
Medical Network EMN, Open Evidence, University Clinic of Basel (Institute for Care of Nursing Science-INS), University of Basel, in collaboration with Careum Research Foundation, University Hospitals of Northern Norway (Norwegian Centre of Integrated Care and Telemedicine), University of Oslo, Faculty of Medicine (Dept. of Health Management and Economics) and Assuta Medical Center (ASS)
Use Cases for Informal Care USECARE project has been developed under the Active and Assisted Living Programme, Convocatoria Call 2014 Programa AAL (AAL-010000-2015-13): <<Care for the future>>, and co-financed by Ministerio de Energía, Turismo y Agenda digital.